In My
Own Words...
touching stories from TNT participants
about who they walk for.
Lori Courtney was kind enough to take
time to share
a touching story about who she walks for:
Personal Hero: Jenna Lee
"I have been
wanting to do this charity event for a few years now, but
something has always "come up" and stopped me. This year, my
husband
wanted to get involved and I went with him as his support. But I am the
one that ended up signing up. I thought
it strange that after all this
time of failing to be able to do this for myself, now here I was doing
it because my
husband was so insistent about coming and he was not even
going thru with it. Jenna is a two year old little
girl that was
diagnosed two days after I signed up to do this walk. God works in
mysterious ways sometimes. I live in
a small town so I heard the news
quickly and I am just getting to know them. Jenna had an accident
during the
Christmas holidays and her neck swelled up really bad. The
doctor didn't know what was wrong with her and after a period
of time
with little or no improvement, sent her to Children's hospital where she
was diagnosed with ALL. She has been
taking chemo (I think it is chemo)
twice a week and I was told today that she has gone into remission!
I am looking forward to getting to know Jenna better and expect
to have a
long and lasting friendship with her and her family.
Thank you, Courtney. We all share your story and will add
Jenna to our
prayers.
Terry Farley took some time earlier in the season to share a story
about who she walks in memory of.
Here is what she had to tell us:
Steve was a close family friend and leader in our church.
He and his
wife were parents to 5 children, four of whom they had adopted, one
with autism. They were
the leadership couple for the Marriage
Encounter programs in Dallas-Ft Worth and taught parenting classes for
our
church. Steve worked in downtown Dallas. He often spent his lunch
hour taking homeless men to a
downtown coffee shop and encouraged them
to turn their lives around. He always had a minute to help anyone who
needed
him.
Imagine our grief when he was diagnosed with leukemia. After several
months' wait, we thought
our prayers were answered when a bone marrow
donor match was found for him. But sadly, he developed pneumonia after
the
transplant and passed away at age 45.
I once heard it suggested, that maybe God takes wonderful people to
Heaven
early, because they've already accomplished the tasks he's given
them to do on Earth. That would surely be true of
Steve. He gave so
much to so many people. And now it is our turn to carry on the work.
So I walk for the
Leukemia and Lymphoma Society and say prayers of
thanksgiving for the wonderful example Steve left us of how to live a
worthwhile
life.
Thank you, Terry, for sharing your story.
From our Honored Hero & TNT Alumni,
Kylene Karsonis:
First of all, I must say that having cancer has definitely
given me a completely
different outlook on life for not only me, but for my entire family. I believe it has only made
me and the people around me stronger! (Once you fight cancer, or watch a loved one fight it, you feel like you can face anything).
When I was 23 years old, I noticed a small place on the side of my thigh, which to me simply looked like a pimple (boy was
I wrong). The place on my leg started to grow in size and seemed to not be going away, so I decided to go to my Family Practice
doctor. He was puzzled by this place on my leg, so he decided to take a biopsy. The biopsy came back as a simple infection.
The normal treatment for this was simple...Antibiotics. So I began the antibiotics and there was no response. The place on
leg was still getting bigger and now becoming a source of irritation. My doctor decided that he needed to send me to another
doctor who he thought would be able to determine what this thing on my leg was. So my journey began. After three different
dermatologist an infectious disease doctor a plastic surgeon and eleven biopsies, I
still had no answers. At this point
you can imagine I was really irritated. However, I can say one thing, I was loosing allot of weight and was thinner than I
had ever been, so I guess I can't complain! =) Anyway, I decided that it was time for me to find my own doctor, so I
went to the Tom Landry Center at Baylor Medical Center in Dallas and went to a well known plastic surgeon. I told him that
I didn't care what this thing on my leg (now the size of an orange) was, but to just remove and cover it up. Three days later
after the surgery, I went in for a follow up and was told
the unthinkable. I had Non-Hodgkins Lymphoma and needed to see
an Oncologist immediately. You can't believe the things that were going on in my mind. I was scared, but determined that this
was not going to affect me. I had two young kids, a home and a job to take care of and I needed to be strong!
I went through six months of aggressive chemo, lost all
my hair, and fought one
of the hardest battles of my entire life. I had my family by my side and a
positive attitude.
I knew that remission was just around the corner and that I
must stay strong to get there. In March of 1998 I finished
my chemo treatments
and was so grateful for everything I had learned from this experience. I formed a bond with soon to
be husband, my parents and children that left me feeling like I was the luckiest person in the
world!
For three years I remained in remission and was living
life to it's fullest. I
got married, bought my first home, advanced in my career, and started my own
business!
I never imagined that in August of 2001, I would be facing the unthinkable, again. It was like it happened over night. I woke
up one morning and thought I had pulled a muscle in my groin. I soon realized I had not pulled a muscle, but I had a lump.
I couldn't believe it. Me and my family had just planned a vacation to beautiful Mexico for one week and I was determined
to go
no matter what. Me and my husband had went there for our honeymoon and we
couldn't wait to take the kids! I
decided at that point, I was going to live
life as it were my last days here on earth and I was going to go to Mexico
and be with my family and I would face the unthinkable once we got back. We went on our vacation and cherished every moment
we were there. We had know idea what the road ahead of us would hold, so enjoying this vacation with my family was very important
to me. When we returned I made the appointment with my Oncologist. Immediately I went into surgery to have the lump
removed. Me and my family tried to stay optimistic and pray that the cancer had not returned. Unfortunately, the biopsy
came back positive, but luckily the cancer was localized and treatable.
I was angry at first, but still determined. I wasn't sure
what type of treatment
they were going to do this time, but I knew it would not be the same as before.
I found out
that I was going to have chemo for five months and then undergo a
stem cell transplant. I had never heard of a stem cell
transplant and had no
idea what to expect. The doctor told me that in the past that stem cell
transplants were usually
only for patients with Leukemia, but because of
research and study that they had found that it is actually an effective
way to
treat other types of cancer including the type I had. Me and my husband
researched on our own the process
of having a stem cell tranplant. We were
amazed how far the treatment had come. It used to be that you were completely
is
olated from everything once the transplant process began. There was a glass barrier between you and your visitors, and
the hospital stay was three to four months. Wow....was my transplant far from that. I was able to have my family by my side
and I was able to leave from the hospital after two weeks. I did have to be admitted back into the hospital several times
for complications, but the time I was able to be at home in my own bed was wonderful. I have now been in
remission for
two years and consider January 5th, 2001 to be my second birthday
(the date of the transplant). I am truly grateful for
the second chance that I have been given, and look forward to growing old with my husband and watching my children grow up to be successful young men.
I found out about Team In Training last year.
I received a brochure in the mail
and thought to my self what better way to give back to the research that I
believe
has given me my second chance and get in shape all at the same time. I
called my mom up and said you've got to join this
program with me! Last year in SanDiego, California I walked my first marathon with my mom by my side. I had a
few complications
because of my health, but I still made it! I can't even begin
to explain the feeling that you will get inside the
day of the marathon! I am so
proud to be a part of such a great organization like Team In Training that makes
the
research of finding a cure for cancer much a reality.
Walk strong and proud.....people like you make all the
difference!!
Kylene Kartsonis
No one is better than Jane Carpenter to describe Kylene. Jane is Kylene's mother,
TNT Alumni & Mentor. In her own words, about Kylene:
"My perspective is awesome, because she is awesome. Kylene and I trained for
San Diego together and she out walked her Mom like crazy. We were able to walk some of the first 6 or 7 miles together
and then she had to use the restroom, so I went on ahead. Janelle Harvey's sisters were there to be our cheerleaders
and when I got to the l3.1 marker I asked them how Kylene was doing, they would not tell me that Kylene had been taken
to the hospital, but I knew. The Dr. at the hospital told Kylene she was very dehydrated, and had a horrible ear infection!!!
The Dr. wanted to keep her, but she was determined to get back and see me finish the marathon!!! We had made a deal no matter
what happened I would finish the race, in my heart I knew she was O.K. or the coach would have come and gotten me, plus I
had her picture on my back and she was my inspiration to keep going. I was so lucky that not only did she see me
finish the marathon but walked across the Finish Line with me holding my hand!! This was one of the greatest days of my live!!!
Kylene is my #1 H.H. she has been through so much in her life, she has battled Non-Hodgkins Lymphoma at the age of 23
and again at the age of 26. She has now been in remission for two years!!! "
Christie Guess took some time to share who inspires her. I pass it on to you:
Sidney
Coker was my uncle who passed away in 1986 from a very long battle with throat cancer, which resulted in two radical neck
dissections the second one of which he never recovered fully recovered from. Sid was my mothers younger brother and
very close to our family. He loved to hunt, fish and basically do anything to help other people. He was always
doing favors like helping people install a new air conditioning system in their house. Major favors. He was one
of those people who would literally give you the shirt off his back. He also loved to eat! He was a big guy and
enjoyed all kinds of good food. Once he got sick, and after his first surgery in 1982, he lost a lot of weight, lost
strength in one side due to the removal of all the muscle tissue and could not swallow or breath easily. He was in constant
pain after that surgery, but he was always positive, always focused on his faith and loved his wife and new baby daughter.
He was a really amazing person as he dealt with his diminished physical vigor and moved on with living his life to the fullest.
Four years later when his cancer reappeared in the other side of his neck, he had to undergo the same surgery again and this
time, he never did recover. He underwent torturous chemo and was eventually moved home to live with hospice care for
the last months of his life. He lost the ability to speak, see and could barely hear. He lost all of his hair
and his face was swollen to the point where he was unrecognizable. The way my uncles illness and death touched our family
cannot be conveyed in words. His death leaves a hole that simply cannot be filled even all these years later.
Watching him suffer was burned into my skull as a young child and young adult. Because of that, I fear cancer almost
more than I fear anything else and being a part of TNT gives me a chance to help in some small way to find a cure and to comfort
other families going through what our family went through with Uncle Sid.
Thank you, Christie for sharing
your thoughts.
Recently, one of our participants, Marcell Rogers, shared the her inspirational story
about her step father, who has been diagnosed with Acute Lymphocyte Leukemia (ALL). Here's what she had to say
about her inspiration:
Ali Bagheri is the most unselfish person I have ever known. He is my stepfather and although I have
never lived with him, he has never treated me as though I was his step daughter. He tells everyone I am his daughter
- he always says 'step' sounds so rude. I have two children and they are his only grandchildren at this time.
He treats them like a princess and prince. He has so much to teach all of us that this illness has been really hard
to bear. It has in some ways made me ask God why!! It has also made me realize we have so little time to
share with each other that we need to be thankful for all we have instead of all we may not have. This is the one little
thing I can do on his behalf to try and feel as though I can be part of the solution in this helpless problem.
We appreciate your story, Marcell and wish you and your family strength in your challenging times
From our Honored Hero Ryan Houser ... he has this to share with the team:
On September 15th, at the beginning of my junior year in high school, I was diagnosed with Acute Lymphoblastic
Leukemia and my life became an emotional and physical struggle. As a result of my battle with Leukemia I developed courage,
will power, and perseverance.
I was playing football with some friends when I noticed that I had become winded very easily and that
I was light-headed and pale. I made an appointment to see the doctor after my step-mom got worried when I told her what had
happened. The pediatrician drew some blood and saw that the amount of red blood cells I had was uncommonly low and that I
had an elevated leukoblast count. He told me that these symptoms suggested either Lymphoma or Leukemia and that I should see
the hematology clinic at Children's Hospital. We met with a doctor there who confirmed that I had A.L.L., (Acute Lymphoblastic
Leukemia), and so began my 8 months of grueling chemotherapy.
After a week in the hospital and a myriad of different tests and injections, I was allowed to return
home and continue my chemo on an outpatient basis. I got a schedule of my next month's chemo and quickly learned that this
was going to be one of my life's great challenges.
The emotional and physical stress of chemo took a large toll on my body and mind. I was taking weight
lifting in school at the time and after a couple of weeks I couldn't even lift a third of the weight I was once able to. The
stress and fear I experienced before getting each spinal tap was almost unbearable. Even in the breaks between each tap I
was administered injections every other day and blood draws every week. I was an emotional wreck and the stress, along with
the drugs, fatigued me.
Eventually though, I made up my mind to not be scared; to suck it up and deal with it, because fear
and apprehension would only make things worse. I decided to roll with the punches and try to continue my life as normally
as possible. A tutor would meet me at home or in the library so that I could catch up on the topics I missed because of my
appointments or being sick from chemo. I stopped cringing before my shots and learned to relax before my spinal taps. I would
deal with my condition day-by-day and not get depressed by the long road to recovery that I knew was ahead.
I am through with the hard part of the chemo now and only have appointments once a month; hardly ever
do I miss any school or get sick. I feel that this experience has changed my life and positively impacted my character by
showing me that I can overcome any adversity; and although I am not glad that I got Leukemia, I have become a better person
because of it.
*** I sent this essay out with my college transcripts and thought it would be good to share with
the team. Thank you all for what you are doing to help. I am looking forward to seeing you all in April. --Ryan
This team is blessed to have such wonderful honored heroes! Walk strong for your
heroes!
From Jennifer Denkhoff- TNT ALUMNI & HH team Captain:
Ric Hoff, long time family friend, has battled leukemia for several years. He was originally diagnosed,
won the battle and remained in remission for 5 or 6 years. In the summer of 2001, he had a relapse, battled and was
notified by doctors of his remission in December - on the day I completed my marathon (also in his honor).
In summer of 2002, he had another relapse, but was given the choice of stronger chemo and slight chance of survival or to let
nature take it's course. He chose to let nature take it's course. After several weeks at home with his family,
he began to increase energy. Nature's course turned out to miraculously irradicate the leukemia - doctor's were mystified
by the absence of the cancer. We shared the family's joy throughout the holidays and shared the miracle with anyone
who cared to listen. Ric spent several years having faith in God, surrounded in prayer and love of family. In
all that time, Ric maintained his ability to be a true example of heroism, commitment, laughter and love.
Ric suffered a massive stroke on March 27, just one day before his 45th birthday. He was left permanently
paralyzed on one side of his body. Ric passed away on April 1. My parents joined me on Friday and we were able
to share our time with his family at his funeral.
Having lost a sister the same way, my mind is filled with thousands of thoughts and memories. As I
sort through my own feelings, what I feel compelled to tell participants is this:
DO IT ANYWAY!!!
You feel tired? Be glad you are alive and can walk.
It's raining? You will dry.
It's too cold or hot? Jackets or water will make it better.
Blister? It will heal.
A cancer patient never really knows for certain what they will conquer, but they remain committed to survival.
You have the ability to conquer every single challenge you encounter right now. Just do it anyway! Time heals
all wounds.
Take a moment and think about the people you walk for - close your eyes and feel their strength.
Renew your spirit to walk and achieve.
Walk strong for your heroes!
Jennifer